I’m a parent“Just because my child is not having tonic clonic seizures anymore doesn’t mean everything is fine!”
A school has a duty of care for your child. If your child has epilepsy, your school must hold an Epilepsy Management Plan (EMP) for them. In cases where emergency medication is prescribed, they should also hold an Emergency Medication Management Plan (EMMP). You should check with your school that they have both of these plans up to date and that your child’s teacher is aware of them.
As a parent, it is your responsibility to complete the EMP. School staff do not do this, but they need to be aware of what it is and how to read it. Where your child requires an EMMP to be in place, you complete this in consultation with your doctor.
There are three key training courses school staff who have a duty of care for your child need to complete.
The objectives of the training are to:
- ensure they have an understanding of epilepsy, the types of seizures and how to read an Epilepsy Management Plan (EMP)
- understand the types of medication used to treat a seizure and the Emergency Medication Management Plan (EMMP)
- be confident they can administer medication to a student, specific to their EMMP
You can also complete training to understand epilepsy better and to be confident yourself to administer medication if your child requires it. You first complete the course – An Introduction to Understanding and Managing Epilepsy.
If you also require training in the administration of emergency medication, you can complete these courses.
Your child may require additional assistance from teachers to help them reduce the effects that sometimes occur from seizures and to feel comfortable and safe at their school. Schools are responsible for making reasonable adjustments in the classroom related to your child’s seizure activity or attendance at medical appointments. This may include:
- Development of a Student Individual Learning Plan
- Setup of a support group for the student
- Adjustment of assessment tasks related to time or reasonable expectations in group work
- Examination adjustments related to increased reading time, breaks or identified trigger considerations
- Engagement of specialist services such as neuropsychologists, psychologists, occupational therapists or speech pathologists
When Individual Learning Plans and student support groups are initiated, parents/guardians should be actively engaged in these meetings.
School transition checklist for parents
The Transition Checklist is a families resource and is included here for schools so that school staff can support families prepare for transition into primary, secondary or special schools. This practical resources provides a checklist for parents/guardians to consider prior to their child moving into primary, secondary or special schools or when moving schools.
Student Individual Learning Plan
This Student Individual Learning Plan (ILP) template is designed for teacher use, however student input is important. The ILP is an interactive pdf document. A Student ILP sample is also available.
Learning conversations about epilepsy
The Learning conversations about epilepsy resource will help parents/guardians and teachers work together to better understand what the possible learning implications may be for the student with epilepsy.
An Epilepsy Smart School understands that all students, not just those with epilepsy, face risks in the classroom, in the yard and on camps/excursions. For students with epilepsy, risk should be balanced between what’s important to and for your child.
Students with epilepsy can generally participate fully in school life, including camps, excursions and special events. However, your child’s Epilepsy Management Plan (EMP) may highlight some additional supports that could be needed for certain activities. You may need to work with your child’s school to develop a Risk Management Plan for these activities.
Because the diagnosis of epilepsy can be complex and evolving, communication between schools and family is important to inform diagnosis and treatment as well as to ensure that your child’s needs are identified and met.
The Inclusive schools document provides a detailed overview of a school’s responsibilities for students with epilepsy.
Disclosing your epilepsy – to get the job done
This Disclosing your epilepsy – to get the job done is a student resource and is included here for parents/guardians so that you can support your child as he/she embarks on a work placement. This practical resource will guide your child through the considerations and implications involved in disclosing their epilepsy within a ‘need-when-how’ framework.
There are different actions your school can take to raise awareness about epilepsy. Holding a Purple Day event is a great way to do this. Promoting awareness of epilepsy helps reduce stigma and ensures people who have epilepsy do not feel alone. There are other activities a school can undertake other than a Purple Day event that can achieve the same results. As a parent, you can raise this with the school, not just for your child, but for all children who have epilepsy.